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Aunt Runs to Raise Awareness

Friday, May 15, 2015   (0 Comments)
Posted by: Andrea Guidi
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Aunt runs to raise awareness of rare disease

  

By Annette McIntyre

Ilkley Gazette 5/15/15

 

 

A DEVOTED aunt is running an ultramarathon to raise awareness of a devastating condition affecting her young nephew.

Two year-old Dylan Llewellyn-Richards has severe gastroparesis - which means he is unable to eat and needs to be fed directly into his bowel for 20 hours a day.

Now his aunt Julia Llewellyn is to run 100km from London to Brighton to improve awareness of the rare condition and to raise money for a charity which helps sufferers.

 

 

Click here to read the full article in the Ilkley Gazette 5/15/15


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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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