Reach Out and Talk to a HomePEN Consumer -- Toll Free!
Toll Free Numbers Available to Canadian Consumers!
Thanks to a donation by Calea, the Oley Foundation is able to offer it’s
toll-free lines to consumers in Canada. The new plan also offers lower rates,
but we no longer have free calls on Fridays.
Oley circulates two toll-free numbers to experienced homePEN consumers on a monthly basis. The goal is to make speaking with fellow lifeliners more affordable, and to provide Regional Coordinators with a better grasp of their regions needs.
Advice given by volunteer coordinators represents the experience of that individual and should not imply endorsement by the Oley Foundation.
Due to the expense, a per-minute fee charged to Oley, we ask that you limit your conversations to 30 minutes. The schedule of toll-free numbers and volunteer coordinators is also published in each LifelineLetter. Comments? Call (800) 776-OLEY.
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Oley Foundation Toll-Free Number Schedule |
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August 1-31, 2008 |
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Carol Pelissier |
EST |
Carol underwent a total colectomy due to colonic inertia, malabsorption, and chronic intestinal pseudo-obstruction. She began HPEN in 1995. She has an ileostomy and has endured over 44 surgeries. She is determined to ensure that people are not alone and to help others cultivate a positive attitude. |
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Carla
Truman |
MST |
Carla’s son Billy, now 21, was on HPEN since birth due to SBS. After a successful small bowel transplant in May 2007 he uses HEN only as a supplement for calories. Carla also has experience with school systems and IEPs as Billy has other special needs as well. |
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September 1-30, 2008 |
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Felice Austin/Mariah Abercrombie |
PST |
Mariah is a 26-year-old college student; she’s been on PN since 1985 due to psuedo-obstruction and now short bowel. She also has a G-tube and an ileostomy. She works as a nanny and enjoys many activities and hobbies. She is comfortable talking to young adults and parents. Felice is a single mother and former social worker. She was Mariah’s caregiver and has been an Oley RC since the late 1980s. |
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June Bodden
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EST |
June has had Crohn’s disease since age 15, an ileostomy since age 21, and has been on PN since age 39 (over 23 yrs., 14 hrs. every day). An Oley RC and an active support group member, June believes networking with others is important. A strong faith, volunteer work, and help from family and friends keep June upbeat. |
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October1-31, 2008 |
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Lou Pacilio
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EST |
Lou was diagnosed with sarcoidosis and developed a swallowing disorder (a rare side effect). He was on HPN briefly, then weaned to tube feeding 9 years ago. He has a J-tube and anostomy, and works PT as a radiologist. He is experienced with changing feeding tubes, caring for ostomy sites, and coping with not being able to swallow even saliva. |
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Anna Cyr |
EST |
Anna’s daughters, Mallory (aged 23) and Maisy (aged 15), were born with micro villous inclusion disease and have been on HPN almost since birth. She has experience with Hickman catheters, pumps, and G-tubes, as well as in child development. Anna works as a consultant with families of children with special health needs, and is an Oley RC. |
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November 1-30, 2008 |
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Don Young
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EST |
Don has been on HPN for 33years due to short gut and Crohn’s disease. He also has an ostomy. Call him to learn more about central venous catheters, PICC lines, and reimbursement issues (i.e., Social Security, Medicare, private insurance, etc.) or for a great chat with someone who has a healthy perspective on living with HPN. |
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Sheila DeKold |
EST |
Sheila is mom to 10-year-oldDavid and 8½-year-old Olivia, who was diagnosed with pseudo-obstruction at the age of 2. Olivia is HPN dependent and has tolerated enteral feeds in the past. Olivia has a G- and a separate J-tube for venting as well as an ileostomy, and requires catheterization overnight. |
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23rd Annual 22nd Annual Conference Highlights 21st Annual Conference Highlights 20th Annual Conference Highlights |
Be sure to ask volunteers about the benefits of attending an Oley
Conference.
2009 Oley Conference Travels to
St. Petersburg, Florida
Note: HICKMAN® catheter/PORT-A-CATH® are registered trademarks of C.R. Bard, Inc. and its related company, BCR, Inc. Updated 8/22/08 |
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