News Coverage of Tube and IV Feeding

Below are links to stories we've found about people on tube and IV feeding at home. It is by no means exhaustive, but gives members an idea of how the general public receives news about these therapies. These stories were not created, edited or published by the Oley Foundation; the ideas and opinions stated in the articles do not represent the views of the Foundation. If you have a story to share, please send the title and link to dahlr@mail.amc.edu.


One Week Later, Australia's First Intestinal Transplant Patient Doing Well (7/13/10)
http://heidelberg-leader.whereilive.com.au/news/story/gutsy-big-deal-in-life-for-bundoora-man/

Intestinal Transplant Performed in Australia (7/5/10)
www.stuff.co.nz/national/health/3885106/Doctors-replace-intestine

Surgeons in Melbourne Complete Australia's First Full Intestinal Transplant (7/3/10)
www.abc.net.au/news/stories/2010/07/03/2943911.htm?section=justin

In Cuba: PN Administered to Patient Engaged in Volunteer Fast (interesting interview with physician) (7/3/10)
http://miamiherald.typepad.com/cuban_colada/2010/07/granmas-interview-with-fariñas-doctor.html

Motorcyclist Riding to Alaska to Promote Crohn's Awareness (7/1/10)
www.journalgazette.net/article/20100701/LOCAL0201/307019981/1002/LOCAL

Major deficiencies in artificial feeding in UK hospitals, inquiry finds (6/23/10)
http://news.bbc.co.uk/2/hi/health/10391886.stm
(for the original report, go to: http://www.ncepod.org.uk/2010pn.htm)

Tailored Treatment: Use of genetic profiling to screen for diseases increasing (6/20/10)
www.signonsandiego.com/news/2010/jun/20/use-of-genetic-profiling-to-screen-for-diseases/

Home Schooling Works Well for Teen with Crohn's (6/2/10)
http://www.the-dispatch.com/article/20100602/ARTICLES/6024012/1003/SPORTS?p=all&tc=pgall

The Hospitalist: New Breed of Specialist Steps in for Family Doctor (5/27/2010)
http://www.nytimes.com/2010/05/27/us/27hosp.html?emc=tnt&tntemail0=y

Los Angeles Nursing Home Fined After Resident Dies …from misplacement of a feeding tube (5/19/10)
http://www.nursinghomeabuselawyerblog.com/2010/05/los_angeles_nursing_home_fined_1.html

New York's Best Softball Team Carries On (5/18/10)
http://www.huffingtonpost.com/2010/05/18/the-bandits-live-new-york_n_579350.html

Teen Doesn't Let Crohn's Keep Him Down (5/13/10)
http://www.pressdemocrat.com/article/20100513/COMMUNITY/100519748?p=all&tc=pgall

Severely ill girl makes huge progress (5/10/10)
http://www.irishtimes.com/newspaper/ireland/2010/0510/1224270050129.html

Premature babies feel more pain, says study (5/10/10)
http://www.herald.ie/national-news/premature-babies-feel-more-pain-says-study-2174372.html           AND
http://worldjewishnews.blogspot.com/2010/05/premature-babies-face-lifetime-of-pain.html

Teen Speaks About Living with Crohn's  (5/7/10)
http://www.bangordailynews.com/detail/142980.html

Judge denies child visitation request by mother accused of putting feces in daughter’s IV tube (5/7/10)
http://www.statesman.com/blogs/content/shared-gen/blogs/austin/courts/entries/2010/05/07/mother_accused_of_putting_fece.html?cxntfid=blogs_austin_legal

Baby unable to eat, to go to hospital in Austria to be cured (4/27/10)
http://www.weekendpost.co.za/article.aspx?id=556233

Benefits of artificial tube feeding (4/26/10)
http://www.nst.com.my/Current_News/NST/articles/20100426232341/Article/index_html

Making Your Wishes Known at the End of Life: Advanced Directives Make a Difference (4/15/10)
http://www.nytimes.com/2010/04/16/health/15chen.html?ref=health

540 days without eating (4/14/10)
http://www.iol.co.za/index.php?set_id=1&click_id=125&art_id=vn20100413123933697C781042

Agency for Healthcare Research & Quality reports of hospital-acquired infection rates (4/13/10)
http://www.nytimes.com/2010/04/14/us/14infect.html?emc=tnt&tntemail0=y

Saudi Arabia to Nebraska – baby Jana’s long journey for treatment  (4/7/10)
http://blog.unmc.edu/ihs/?p=386

Advance Directives and Outcomes of Surrogate Decision Making before Death (4/1/10)http://content.nejm.org/cgi/content/short/362/13/1211

After 7 years at Walter Reed, Kyrgyz woman has no place to go  (3/28/10)
http://www.washingtonpost.com/wp-dyn/content/article/2010/03/26/AR2010032601921.html     AND

http://www.journalgazette.net/article/20100412/FEAT/304129936/1162

Social Networks a Lifeline for the Chronically Ill   (3/24/10)
http://www.nytimes.com/2010/03/25/technology/25disable.html

George Karl 'I hope I'm ready'  (3/17/10)
http://sports.yahoo.com/nba/blog/ball_dont_lie/post/George-Karl-I-hope-I-m-ready-?urn=nba,228612

Increased Safety Needed in Assisted Living (3/8/10)
http://www.turkgeek.net/increased-safety-in-assisted-living/

Suspect gene linked to food allergy -- Eosinophilic Esophagitis (3/8/10)   
http://www.google.com/hostednews/ukpress/article/ALeqM5jMvD4QdFg8icqoU4v5FMuuHPRwzA

Gene Site Found for Food Allergy (3/7/10)
http://www.chop.edu/news/gene-site-linked-to-food-allergy.html

Balloon of hope (3/7/10)
http://bdtonline.com/lifestyles/x275795944/Balloon-of-hope

Local boy inspiration to family after years of surgery (3/6/10)
http://www.reviewonline.com/page/content.detail/id/524646.html?nav=5007

Meet speech pathologist James Hansen (3/4/10)
http://www.albertleatribune.com/news/2010/mar/04/meet-speech-pathologist-james-hansen/

Bishops’ directive limits choices at end of life (3/4/10)
http://www.pantagraph.com/news/opinion/mailbag/article_eaab8c18-271c-11df-a834-001cc4c03286.html

Life With a Pouch on the Side (3/2/10)
http://well.blogs.nytimes.com/2010/03/02/life-with-a-pouch-on-the-side/

US bishops' directive on feeding tubes meet criticism (3/2/10)
http://www.cathnews.com/article.aspx?aeid=19667

Roger Ebert Speaks Again (3/1/10)
http://www.dbtechno.com/entertainment/2010/03/01/roger-ebert-speaks-again/

Wish granted, little Donavan went to Disney World (2/28/10)
http://www.digitaljournal.com/article/288319

Ray of hope for Sienna Smith, of Firthmoor, in Darlington (2/26/10)
http://www.thenorthernecho.co.uk/news/5030163.Doctors_give_ray_of_hope_to_two_year_old/

Learning to eat: Helen DeVos Children's Hospital helps kids through behavior modification (2/15/10)
http://www.mlive.com/news/grand-rapids/index.ssf/2010/02/learning_to_eat_helen_devos_ch.html

Following up after GIFT of life -- Team works on transition for teen HomePENers to adult care (2/13/10)
http://www.healthzone.ca/health/newsfeatures/article/762983--following-up-after-gift-of-life

Feeding Tubes May Be Over-Used In Dementia Patients (2/12/10)
http://www.nursinghomesabuseblog.com/2010/02/articles/clogged-feeding-tubes-1/feeding-tubes-may-be-overused-in-dementia-patients/

Little Nathan: Disorder prevents 3-year-old from swallowing solid food  (2/3/10)
http://www.courierpress.com/news/2010/feb/03/little-nathan/

Putting a Face on Crohn's Disease  (1/14/10)
http://www.wkowtv.com/Global/story.asp?S=11826762

Hundreds Rally to Protest State Budget Cuts in Maine -- including a tube feeder    (1/12/2010)
http://www.mpbn.net/Home/tabid/36/ctl/ViewItem/mid/3478/ItemId/10551/Default.aspx

Crohn's disease | Healthy on the outside, suffering on the inside   (1/10/10)
http://fredericksburg.com/News/FLS/2010/012010/01102010/501924/index_html?page=1

Young Girl Finds Escape in Figuring Skating from Extreme Allergy (1/9/10) 12-Year-Old Battling Dangerous Food Allergy Finds 'Home' on Ice
http://abcnews.go.com/GMA/Weekend/12-year-extreme-food-allergy-finds-solace-skating/story?id=8723732

Cody 'definitely on the mend': 19-year old in New Zealand on HPN (1/9/10)
http://www.stuff.co.nz/nelson-mail/news/3217991/Cody-definitely-on-the-mend

Roger Ebert's Journal: Nil by Mouth (1/6/10)
http://blogs.suntimes.com/ebert/2010/01/nil_by_mouth.html

Care home patients given feeding tubes 'to save on staffing' (1/6/10)
http://www.timesonline.co.uk/tol/life_and_style/health/article6977163.ece

Stroke risks prompt hearing (1/4/10)
http://www.theday.com/article/20100104/NWS12/301049933/1044

Pfizer Acquires a Stem-Cell Therapy for Inflammatory Bowel Disease (12/21/09)
http://www.nytimes.com/2009/12/21/business/21pfizer.html?_r=3&ref=health

One couple's journey of love (12/20/09)
http://www.heraldtribune.com/article/20091220/ARTICLE/912199991/-1/NEWSSITEMAP

The Long Shadow of the Bishops -- More coverage of the US Bishops' Ruling on Tube Feeding at End of Life   (12/17/09)
http://www.huffingtonpost.com/barbara-coombs-lee/the-long-shadow-of-the-bi_b_396193.html

Survivor of 6 transplants gives thanks  (12/14/09)
http://news.cincinnati.com/article/20091214/NEWS01/912150310/Survivor+of+6+transplants+gives+thanks

Carry a list of medications you take, says patient-safety group (12/14/09)*
http://seattletimes.nwsource.com/html/health/2010502091_drugerror14m.html
*For handy forms try: http://www.wapatientsafety.org/mymedicinelist/examples.html

Your Final Wish Isn’t Always Your Doctor’s Command: Ann Woolner  (12/9/09)
http://www.bloomberg.com/apps/news?pid=20601039&sid=amr0P2SxeQlE

Getting her life BACK -- A young woman with Colitis (12/7/09)
http://www.stcatharinesstandard.ca/ArticleDisplay.aspx?e=2209699

Year-Round Camp Offers Opportunities for Nurses, Families (12/7/09)
http://news.nurse.com/article/20091207/CA02/112070079 

After Life of Surgeries, Hope for One Final Operation (12/6/09)
http://www.nytimes.com/2009/12/07/nyregion/07neediest.html?_r=2 

Mended Little Hearts Christmas Party shows group has heart (12/6/09)
http://newsok.com/city-event-shows-group-has-heart/article/3422982

Teen struggles with rare disorder (CIPO) (12/1/09)
http://www.wishtv.com/dpp/health/pediatrics/teen-struggles-with-rare-disorder1259676525134

For some kids, holidays are food for thought (11/30/09)
http://www.nj.com/gloucester/index.ssf?/base/news-14/1259559612159420.xml&coll=8

Patient counts his hyperbaric blessings (11/26/09)
http://www.dailyinterlake.com/news/local_montana/article_ebf9f464-da4c-11de-b77f-001cc4c002e0.html

CRBSI surveillance saves money  (11/21/09)
http://www.ivteam.com/crbsi-surveillance-saves-money/

Squeamish teachers turn away tube-fed child (11/19/09)
http://www.thisisderbyshire.co.uk/news/School-squeamish-poorly-poorly-boy/article-1527517-detail/article.html

Bishops Rule on Medically Assisted Nutrition and Hydration at End of Life, and Other Issues (11/18/09)
http://www.usccb.org/comm/archives/2009/09-242.shtml

Where’s the compassion? Funding cut for 'disabled' adults  (11/16/09)
http://blogs.kansascity.com/unfettered_letters/2009/11/wheres-the-compassion.html

Radioactive surprise at hospital: Iodine lodged in patient’s feeding tube, VA reports  (11/16/09)
http://www.signonsandiego.com/news/2009/nov/16/radioactive-surprise-at-hospital/

Gut wrenching: Australia prepares for its first intestinal transplant  (11/14/09)
http://www.smh.com.au/national/gut-wrenching-20091113-iepq.html

Man uses remote to control his 'bionic bottom' (11/13/09)
http://www.telegraph.co.uk/news/newstopics/howaboutthat/6560971/Man-uses-remote-to-control-his-bionic-bottom.html

University of Arizona surgeons perform multi-visceral transplant in 1-year-old Phoenix girl, a first for Arizona and Southwest    (11/12/09)
http://www.healthnewsdigest.com/news/Surgery_540/Baby_Receives_a_Three-Organ_Transplant_at_University_Medical_Center.shtml

       Related story: Gilbert baby undergoes 3-organ transplant  (11/13/09)
                                   http://www.eastvalleytribune.com/story/147153

For Patients Who Can't Eat, Dr. Stanley Dudrick's Intravenous Feeding System Is a Lifeline (11/10/09)
http://www.sparkchamps.com/2009/11/for-patients-who-cant-eat-dr-stanley.html

Kerry Legislation Would Provide Medical Coverage for Food and Supplements for Children with Rare Health Disorder    (11/10/09)
http://kerry.senate.gov/cfm/record.cfm?id=319840

Database to hold health directives   (11/9/09)
http://www.statesmanjournal.com/article/20091109/HEALTH/911090323/1093

New Homecare Accreditation Requirement Creating Patient Access Issues -- including enteral and parenteral nutrition supplies  (11/3/09)
http://www.reuters.com/article/pressRelease/idUS146178+03-Nov-2009+PRN20091103

Laughter is the best medicine  (10/29/09)
http://news.bbc.co.uk/2/hi/health/8329828.stm

No guarantees: 3 tales of insurance disaster    (10/26/09)
http://www.msnbc.msn.com/id/33441437/ns/health-health_care/

Event to raise awareness, money for little-known disease (EE)   (10/25/09)
http://www.hometownlife.com/article/20091025/NEWS06/910250409

ALL IN A DAY:
Crohn's patient who lives on parenteral nutrition gets by with family, friends and a strong routine  (10/24/09)
http://archives.timesunion.com/mweb/wmsql.wm.request?oneimage&imageid=8902106

Prescott woman gets rare transplant   (10/13/09)
http://www.dcourier.com/main.asp?SectionID=1&SubSectionID=1&ArticleID=73420

CBS Coverage of a Colonoscopy    (9/10/09)
http://www.cbsnews.com/stories/2009/09/10/health/cbsdoc/main5300270.shtml

Hiring a Nurse to Manage TPN in Hospital Lowers Infection, Saves Money    (9/7/09)
http://www.imn.ie/index.php/current-issue/news/2245-mater-initiative-saves-money

Toddler overcomes dangerous medical condition  (no date available)
http://millelacscountytimes.com/index.php?option=com_content&task=view&id=2339&Itemid=87

CEOs Reap Benefits While Insurance Companies Systematically Deny Care to Ill Policy Holders (8/6/09)
http://www.commondreams.org/newswire/2009/08/06

End of Shift: The 24-Hour Shift
Los Angeles County nurse provides around-the-clock RN-level care for her medically fragile son  (3/23/09)
http://news.nurse.com/article/20090323/CA02/103230028

 

Updated 7/14/10