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Contact:
Joan Bishop, 518-451-6557
bishopj@mail.amc.edu

CELEBRATION OF LIFE AWARD PRESENTED TO
MALISA MATHENY OF JENKINTOWN



Albany, NY, August 1, 2017— The Oley Foundation, based at Albany Medical Center in Albany, NY, is pleased to announce the issuing of the 2017 Celebration of Life Award to Malisa Matheny of Jenkintown, PA. The award recognizes someone who has been on home parenteral and/or enteral nutrition (HPEN) for three years or longer and who lives life to the fullest.

Malisa has fought hard to overcome the obstacles of having pseudo-obstruction and now mitochondrial disorder, and she has not let it hold her back from living life to the fullest.

Malisa has been on home parenteral nutrition (HPN), and sometimes home enteral nutrition (HEN) since 1993. She was one of the first teenagers to become an Oley regional coordinator and ambassador.

Because of growing up on TPN, Malisa knew the challenges one faces gaining independence when having a chronic medical condition. She organized and helped create a program for teens and young adults with chronic health issues at the Children’s Hospital of Philadelphia.

Malisa was determined not to let being on HPN hold her back. She went to Temple University and graduated with a nursing degree. While in college, Malisa met her future husband and they were married in 2005. However, for the next four years, she experienced a decline in her health and was hospitalized frequently. A severe GI virus in 2009 left Malisa bedridden for years.

Despite her medical problems, Malisa desired to be a Mom – going against many who said that she could not do it. In Sept. 2007, she underwent in vitro fertilization (IVF) to create five embryos and in September 2008, one of the embryos was transferred to a surrogate. On May 27, 2009, her daughter, Julianna Hope was born.


Malisa is full of love, compassion and empathy, and has given of herself many times to help someone going through TPN or experiencing another medical condition. Over the years, Malisa has been managing an on-line health journal and sharing her experiences with others. She has blogged, made phone calls, was active through Oley, and then when bedbound was very active on social media. No matter how restricted, Malisa finds ways to celebrate special moments with her daughter and loved ones.

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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