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2017 Annual Conference Details
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2017 Oley 32nd Annual Consumer/Clinician Conference 

Hyatt Regency 

Old Greenwich, Connecticut

July 5-8, 2017

 

Click here to register!


 

Conference Headquarters & Housing

Hyatt Regency Greenwich

Click here for reservations

 

Or call: (888) 421-1442 or (402) 592-6464 and mention the Oley meeting.

 

The rate of $159/night for a single/double, $209 for a triple, and $234 for a quad, roll-away $25 per stay, is open through June 13, and will be honored three days pre and post conference, based on availability. Reserve early if you are planning to extend your stay. There are refrigerators in all rooms. Oley guest discounted self-parking fee is $5/day.

Medical Support—Keeping You Safe!

The local hospitals will be alerted. Let your homecare company know you are traveling. If your home care company is unable to assist you in the case of an infusion emergency during the conference (if you forget something, have a bag break, etc.), emergency infusion backup support and telephonic nursing/pharmacy support will be available courtesy of Coram CVS/specialty infusion services.

Shipping HomePEN Supplies

Separate items that need refrigeration and mark these boxes accordingly. All deliveries should be labeled as shown below. Storage is limited, so please arrange to have your supplies arrive no earlier than Friday, June 30. There may be a fee for larger boxes, a large number of boxes, and/or boxes received before the 30th.

    _____Your Name________, Guest
    Hold for Arrival on 7/___/17  
    c/o Hyatt Regency Greenwich
    1800 E Putnam Avenue
    Old Greenwich, CT 06870
    Box ___ of ___  
    Re: Personal Medical Supplies, Oley Conference
          Needs Refrigeration (if applicable)

Main Sessions, Breakout Sessions & Tube Feeding Workshop—Learning Opportunities Abound!

Presentations are coordinated to boost your understanding of the therapies that sustain you or your loved one. Formal morning sessions are followed by informal afternoon breakout sessions, the interactive Tube Feeding Workshop, and pediatric-focused sessions in the Family Friendly Room. See the Program-At-A-Glance (below) for a tentative list of topics to be covered.

 

Family Friendly Room

Main session presentations will be projected into a relaxed, family friendly room in the morning. In the afternoon, panel sessions will be held with topics specific to pediatric care and parenting issues. Children will stay with or close to their parents and other children. Activities/entertainment will be planned in the foyer (just outside of the Family Room) and volunteers will be available to help occupy the children. Comfort stations will be available in the rear of the room.

 

Special arrangements can be made for a parent to attend the Tube Feeding Workshop, or a different, specific breakout session if desired. Parents are encouraged to split up and attend different sessions so they return home with as much information as possible.

Ambassador Workshop/Volunteer Info Session

Planned for “official” Oley volunteers, but open to anyone interested in serving Oley through outreach, social networking, etc. Learn how to share your time and talents to advance the Oley mission. For more information  contact Lisa at metzgel@mail.amc.edu. RSVP when registering.

Jammin’ Jammies

A chaperoned activity is planned for children ages 7+ on Friday evening! Children/youth must be registered online by June 23 to participate in these activities. If you don’t have access to the Internet, call to register your child/youth.

Walkathon Raises Funds, Awareness

Gather sponsors and join us for a short walk. Click here for a form.

Breakfast and Brainstorming—Bring Your Questions

Join Oley for Breakfast and Brainstorming—the conference closing session. Experienced professionals and consumers will be on hand to share their expertise and wisdom. We expect this to be informative and interactive with plenty of opportunity to address a nagging doubt, or clarify something you heard in a session. Updates will be posted online as the experts are confirmed. Upon the conclusion of this special event, we’ll capture photos and bid our farewells.

 

Market Research

Share your experience with tube feeding and/or IV nutrition to help improve the next generation of products. Indicate your interest on the registration form, and be sure your membership profile on www.oley.org is up-to-date! We determine who is eligible based on the information you’ve provided. Contact Cathy Harrington at (518) 262-5079 or harrinc@mail.amc.edu if you have questions about updating your profile. Opportunities for market research are limited and available to qualified participants on a first-come, first-served basis.

Silent Auction Items Needed

Let’s make this event the best ever! Popular items include: small electronics; jewelry; hand knit or quilted pieces; games/toys; and gift certificates. Bring your contributions with you or contact Cathy at harrinc@mail.amc.edu or (518) 262-5079 to make arrangements to ship.


Why Should I Attend?

Proven Benefits to Patients in Contact with Oley

  • Lowers the incidence of catheter-related sepsis1

  • Reduces reactive depression1

  • Significantly improves quality of life1

  • Gives members the tools and confidence they

  • need to manage their therapy2

  • Enables members to achieve normalcy in their lives2

More Reasons ...

  • Learn to communicate your health care needs with more self-assurance

  • Get access to the latest information on nutrition support

  • Meet others on home tube feeding and/or IV nutrition

  • Clinicians—learn and become better resources

Plus! Oley Provides a “Safe Harbor”

  • Local emergency room information will be identified.

  • Nursing/pharmacy backup support has been arranged.

  • Hotel is aware of your supplies and shipping needs.

  • Rooms have refrigerators.

 

1 Home Parenteral Nutrition: Does Affiliation with a National Support and Education Organization Affect Outcomes? Smith, et. al., JPEN 2002;26(3):159-163.

2 A Qualitative Study of the Perceived Value of Membership in The Oley Foundation by Home Parenteral and Enteral Nutrition Consumers. Chopy, et al. JPEN 2014; online 17 March 2014, DOI: 10.1177/0148607114527134.

 

Program-At-A-Glance (Tentative)

Wednesday, July 5

12:00 pm – 5:00 pm    Early Registration
1:00 pm – 6:00 pm    Ambassador Workshop/Volunteer Info Session
6:00 pm – 7:00 pm    First-Time Conference Attendee Orientation
7:30 pm – 9:30 pm    Welcome Reception/Awards Ceremony

Thursday, July 6

8:00 am – 4:30 pm    Registration/Information
8:45 am – 12:00 pm    Main Session*
12:00 pm – 2:30 pm    Exhibits with Lunch
2:45 pm – 5:00 pm    Tube Feeding Workshop*
2:45 pm – 5:00 pm    Family/Pediatric Panel*
2:45 pm – 3:45 pm & 4:00 pm – 5:00 pm
     Breakout Sessions (attend two groups)*
7:30 pm – 9:00 pm    Oley Silent Auction

Friday, July 7

8:00 am – 4:30 pm    Registration/Information
9:00 am – 11:45 am    Main Session*
11:45 am – 12:00 pm    In Loving Memory
12:00 pm – 2:30 pm    Exhibits Raffle Day with Lunch
2:45 pm – 5:00 pm    Family/Pediatric Panel*
2:45 pm – 3:45 pm & 4:00 pm – 5:00 pm
     Breakout Sessions (attend two groups)*
8:00 pm – 10:00 pm    Jammin’ Jammies

Saturday, July 8

9:00/10:00–11:00 am    Oley Walkathon Registration/Walk
11:00 am – 2:00 pm        Breakfast and Brainstorming*

 

* Topics Covered in the Sessions

...will include, but are not limited to the following. Stay tuned to oley.org/AnnualConference for updates!

• Central Line Infection Prevention  
• What’s in Your HPN Bag?
• Is Gattex for You?
• Addressing Skin/Wound Care
• Maintaining Hydration
• Managing Diarrhea
• Reimbursement Issues in Challenging Times
• Organizing and Tracking Your Own Medical Data for Self-Advocacy
• Why I Need My Dietitian
• Oh, the Places You Can Go! My Three Pregnancies While on HPN!
• Transitioning to Independence
• Staying Safe in a Medically Complex World
• When and Why: Palliative Care
• Navigating through Transportation Security (TSA)
• Highlights from the International Congress of the Intestinal Rehabilitation & Transplant Association meeting
• Call to Action: Your Role in Advocating for Legislation Changes
• Developing a Patient Clinician Partnership
• Managing Motility Disorders
• The Trend to Blend a Tube Feeding Diet
• Summary of Recent Tube Feeding Flow Studies
• Enteral Formula and Medication Delivery: Need a Plumber’s Helper?


 

Travel Grants for Conference Attendees!

Thanks to generous donors there are several $600 travel scholarships available for consumers or a family member who cares for them. Priority will be given to applicants who will be attending the Oley annual conference for the first time, and Oley Ambassadors.


Qualified conference registrants should write two paragraphs describing how they believe attending the conference will affect their life and submit them to harrinc@mail.amc.edu or The Oley Foundation, 43 New Scotland Ave., MC-28, Albany Medical Center, Albany, NY 12208. The ideal candidate will also describe their plans to share information learned at the conference with consumers and/or clinicians back home.


Later, if there are travel grants still available, we will consider applications from consumers and caregivers who have attended a conference before. You can be placed on this waiting list by submitting your paragraphs as outlined above. Please indicate (in the subject line, if sent by email), that you’d like to be placed on the list.


Applicants should not be receiving any other financial assistance for travel and/or lodging expenses related to attending the conference. Travel grants are limited to one per family/household. Travel must be completed and receipts received by Oley before reimbursement can be made.

Other Ideas to Help with Travel

Compassion flights from Air Charity Network or similar group
Financial help from United Way, Altrusa International, Kiwanis, Rotary or Lions clubs, churches or synagogues, disease-specific and wish-granting organizations
Travel tips and planning
• Tax deduction for conference-related expenses (consult your tax advisor; and IRS Publication 502 Medical and Dental Expenses ).
• PLUS!  Some of your meals are covered at the conference... making it more affordable for you and your family!

Getting to the Hotel

Airport Options, Miles/Driving Time to Hotel

  • LaGuardia Airport (LGA): 29 miles, 42 minute drive
  • John F. Kennedy Airport (JFK): 36 miles, 59 minute drive
  • Newark Liberty Airport (EWR): 53 miles, 69 minute drive
  • Westchester County Airport: 17 miles, 23 minute drive

 

Train Stations:

The hotel shuttle is available from the train stations, by appointment only.

  •     Old Greenwich Train Station (Metro-North): 1 mile
  •     Stamford Train Station (Metro-North): 2 miles

 

Commercial Shuttle/Car Service
There are many car services available. You might also try Uber or Lyft.

  • ShuttleWizard.com
  • us.jayride.com
  • Saferides.org
  • Connecticut Limo (ctlimo.com/airport-shuttle-service).

 

Registration Fees

  HPEN consumers, friends, and family     FREE

  Oley professional members                       $100

  Company representatives                          $200

   (First two reps are free for exhibitors)

 

Please consider a donation to offset conference expenses.

Pay online, onsite or make checks payable to “The Oley Foundation.”

 

 

 updated 5/17/2017

 

more Calendar

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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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