When she was given the LifelineLetter Award, HPN, at the 2016 Annual Oley Consumer/Clinician
| Fran, Stephanie, and Kalina celebrating during the annual walkathon.
Conference, Jana Daigle touched a chord with all of us in the audience, and did a nice job summing up what is special about an Oley conference. “Everyone who received an award was given a word that those who nominated them felt described them best,” she explained. “I was given the word ‘enthusiasm.’ I had a really good laugh when I saw my word, because it looked nothing like the words I would have chosen…tired, exhausted, nauseated, bloated, overwhelmed…ALL DONE.”
“I think we can all agree that our bodies are LOUD,” she continued. “Like, two-year-old-pitching-a-fit-in-the-middle-of-the-grocery-store loud. It is obnoxious and distracting, and it can be impossible sometimes to focus on anything else. Like when your tube is leaking searing digestive juices onto an already raw stoma, or when your bowels have decided that the time for movement is here and now, regardless of how near the closest restroom is, or when you are green nauseated, or when you are so hungry but cannot eat, so instead you just turn on Food Network (which is essentially like food porn)—in pain and ALL DONE.
“These are all ways that our bodies in here can be louder than the rest of us. And I don’t want to minimize these things or tell you to just ignore them, but instead I want to encourage you to turn up the volume on the other things in your life that are true about you. Essentially, I want to challenge you to find a new word. When the precious friends of mine…gave me the word enthusiasm, they let me borrow their eyes for a bit to see a side of myself I tend to forget.
“This is the beauty of this conference. You are surrounded by people who look at you and see strength, ingenuity, bravery, and creativity in how you walk through this life. When you see those things in someone this week, show them. Tell them. It...can be just a simple word or statement that reminds them of who they are underneath all of the tubes and the scars and the noise.”
At an Oley conference, people understand what it is like to live with the complications home parenteral and enteral (HPEN) consumers commonly face. An Oley conference is an opportunity to learn about your nutrition support—in formal and informal settings—and to meet others who will see “underneath all of the tubes and the scars and the noise.” (Read more about Jana on page 4.)
Who attended the Oley conference in Newport Beach in July?
• 115 consumers (80 adults, 35 children);
• 209 family members and/or caregivers (148 adults, 61 children);
• 87 clinicians (43 dietitians, 19 nurses, 15 physicians, 8 pharmacists, and 2 social workers);
• 85 exhibitors (exhibitor only, no crossover with other categories)
—for a total of 496 attendees!
Of these, 82 were attending their first Oley conference, and 18 were Oley Ambassadors. Thirty-six companies and nonprofits exhibited their products and services.
In addition to the main presentations given Wednesday and Thursday mornings, on topics from “Advances in Treatment for Intestinal Rehabilitation” to “Venous Rehabilitation: Changing the Paradigm in the Management of Occluded Systemic Veins,” twenty-two breakout sessions were offered.
What People Said About Conference Breakout Sessions
“Great practical advice...with expert summary on a complex issue.”
“A few nuggets of gold-level information.”
“[The ‘special ed’ advocate] was so informative and knowledgeable. I learned so much…I can now go into IEP meetings with confidence to advocate for my new baby.”
“I was immediately drawn to this session and ended up liking it more than any other. Emotional, but very real. And important.”
“Great to be in an environment when it is safe/comfortable to discuss diarrhea. Awesome! Only with Oley.”
“Very useful info that I will be able to use in [my clinical] practice.”
Next year’s conference will be at the Hyatt Regency in Old Greenwich, Connecticut, July 5–9. We hope to see you there!