Oley Conference 2010: A 25th Anniversary Celebration (Print Conference Registration Packet - PDF)

 

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2010 Conference Program

We're in a "sold out" situation at the Gideon Putnam Hotel and have arranged for overflow accommodations at:

The Hilton Garden Inn
125 South Broadway
Saratoga Springs, New York 12866
518-587-1500

Mention "Oley" to access the room block and rate of $127/night. 
Note:  All rooms have refrigerators! 

Book your room online www.saratogasprings.hgi.com   and enter Group Code OLEY  or call (518) 587-1500

A web link is being created and will be posted here next week!

Reserve Your Room Now!

Join us at the historic Gideon Putnam Resort in Saratoga Springs, N.Y., for the 25th Oley Consumer/Clinician Conference, June 28–July 2. Twenty-five years ago, the Oley Foundation held its first meeting — a half-day picnic — in Saratoga Springs. These gatherings have grown to the conferences we now enjoy, and we are bringing the conference back to Saratoga Springs to celebrate this anniversary. Make your reservations by phone. 

Come early, stay later, and enjoy all that this area has to offer. Plan on golfing with us (watch for details on a tournament!); boutique shopping downtown; visiting Saratoga’s famous mineral baths, dance museum and race course; and just plain relaxing. Sessions at the Double H Ranch (a Hole in the Wall camp) run during and just after the conference — it might be the perfect opportunity for a youth camp experience! (Click here for camp details.)

Why Should I Attend?

The Oley Foundation conference focuses on the medical and emotional challenges of patients on home intravenous nutrition and tube feedings. Information is shared in large and small groups led by well-known clinicians from across the country and attended by people who depend on tube or IV feeding.

  • Come to the conference to:

  • Understand more about the therapy that sustains you or your family member.

  • Learn how to better deal with day-to-day life.

  • Communicate your health care and emotional needs with more self-assurance.

  • See what the future may bring for those on long-term HPEN.

  • Meet others living at home with tube and/or IV feeding.

As one attendee put it, “Whether it was ways to reduce line infections or learning about portable feeding pumps to improve our quality of life, Oley provided us hope.”

Plus!

  • Many of the obstacles that might stand in the way of traveling have been removed: 

  • Local emergency room information has been identified.

  • Nursing/pharmacy backup support has been arranged. 

  • Hotel staff has been briefed about your supplies and shipping needs.

  • Refrigerators available for patients. 

  • The room rate we’ve negotiated is a deal for a resort like this.

Program At-A-Glance

Monday, June 28

1:00 pm                       Golf Tournament

2:00 pm – 5:00 pm       Early Registration
3:00 pm – 5:00 pm       Regional Coordinator Workshop
7:00 pm – 9:00 pm       Golf Awards/Welcome Reception

Tuesday, June 29

8:00 am – 4:30 pm       Registration/Information
8:30 am – 9:00 am       First-Time Attendee Orientation
9:00 am – 9:45 am       Welcome/Awards Ceremony
9:45 am – 12:00 pm     Main Session I:
                                  On the Inside Track
12:00 pm – 2:00 pm     Grand Opening of the Exhibit Hall
2:00 pm – 4:30 pm       Youth Activity
2:15 pm – 4:30 pm       Tube Feeding Workshop

2:15 pm – 3:15 pm & 3:30 pm – 4:30 pm

          Breakout Sessions I & II (choose 2)

           1.  What to Expect from Intestinal Failure Centers
           2.  Catheter Placement/Care/Preventing Sepsis
           3.  Minimizing HPEN Complications: Liver, Renal, Bone
           4.  Managing Pain Effectively
           5.  Tools for Managing Your Ostomy
           6.  Coping (for consumers/patients only)
           7.  Self Care for the Caregiver
           8.  Transitioning to Independence

7:30 pm – 9:00 pm       Oley Silent Auction

Wednesday, June 30

8:45 am – 4:30 pm       Registration/Information
9:00 am – 9:15 am       In Loving Memory

9:15 am – 12:00 pm     Main Session II:
         Heading Down the Home Stretch
12:00 pm – 2:00 pm     Raffle Day in the Exhibit Hall
2:00 pm – 4:30 pm       Youth Activity
2:15 pm – 4:30 pm       Pediatric Workshop

2:15 pm – 3:15 pm & 3:30 pm – 4:30 pm

          Breakout Sessions III & IV (choose 2)

           1.  Fatty Liver Disease: Diet Does Matter
           2.  The Ins and Outs of Fluid Balance
           3.  QoL at Home and Abroad
           4.  Dating Issues
           5.  Self Monitoring:  How and Why?
           6.  Gastroparesis/Motility Disorders, Etc.
           7.  Understanding Your Lab Values
           8.  Reimbursement: Accessing Medicare, SSI, etc.  
           9.  Transitioning to Independence

6:00 pm – 8:00 pm       Town Meeting

7:30 pm – 10:00 pm     Jammin’ Jammies

Thursday, July 1

10:00 – 11:00 am         Oley Walk-A-Thon

11:00 am – 3:00 pm     Picnic

Friday, July 2

10:00 am – 12:00 pm   Farewell Breakfast


Where to Call for Information

To learn more about the conference, call the Oley Foundation (518) 262-5079 or (800) 776-OLEY; email bishopj@mail.amc.edu.

Registration — Free for Consumers/Families

Register online, print a form or call (800) 776-OLEY for a form. All registrants are responsible for their own hotel and transportation arrangements. If you wish to confirm your registration, please allow 7 business days before calling.

Child Care/ Youth Activities/Jammin' Jammies

Complimentary child care will be available at the hotel, Tuesday and Wednesday during the educational sessions. For children ages 7+ we offer chaperoned activities in the afternoon and a pajama party on Wednesday night.

Main Sessions

Enjoy presentations coordinated to boost your understanding of homePEN and increase your odds of minimizing complications.

On the Inside Track

  • At the Starting Gate 40+ Years Ago! — My Journey on PN

  • What’s New with Vascular Access

  • Down the Home Stretch with Medical Management of Intestinal Failure

Heading Down the Home Stretch

  • QoL… Learning From You and Why It’s Important!

  • Win/Place/Show Me the Way to a Better Relationship with My Medical Team

  • Are There Problems with Current Doses of Micronutrients?

  • Hot Topics

Tube Feeding Workshop

A must-attend for tube-feeders. Join us to learn more about options for tubes and sites, troubleshooting complications including skin/wound care, and food-drug interactions (clogging causes and resolutions!). Plenty of time is allowed for interaction with faculty.

Pediatric Workshop

Provides a unique opportunity for parents to learn more about topics such as intestinal failure in pediatrics, surgical options, school programs/plans for special need, self-awareness and self-advocacy skills (essential tools for the transition to adult services), and an overview of a summer camp opportunity. Plenty of time is reserved for interacting with the professionals and each other.

Transitioning to Independence

Join the young adult group (age 15+) to learn what needs to be put in place if you are to succeed in assuming responsibility for your medical care, head off to college, live independently, etc. After a brief presentation on what’s involved in taking responsibility, the group will be divided by age and participants can enjoy an afternoon with peers.

Golf Tournament

Join Oley for this super-fun fundraiser on Monday, June 28. Details and registration forms will be posted at www.oley.org or call (800) 776-OLEY.

Walk-A-Thon Raises Funds, Awareness

This year’s route is a short walk through Saratoga State Park (less than an hour, just behind the hotel). Use the form to gather sponsors for this event and help raise awareness. Download form or call (800) 776-OLEY.

Conference Headquarters & Housing

Gideon Putnam Hotel
24 Gideon Putnam Rd., Saratoga Springs, NY 12866
(866) 890-1171 • www.gideonputnam.com

Rate:  • $145/night single/double
          • Effective from June 27 through July 2

To to secure the group rate, you need to make your reservation by phone, by May 28, and indicate Oley’s code: 9N11TG

Medical Support—Keeping You Safe!

Medical facilities will be alerted and prepared to receive any medical emergencies that arise. The Guilderland branch of Apria Healthcare/Coram Inc., Specialty Infusion Services will provide emergency infusion support (should you forget something, have a bag break, etc.) along with telephonic nursing/pharmacy support during the conference.

Shipping HomePEN Supplies

When shipping your supplies, separate items that need refrigeration from those that do not. Clearly indicate on the outside of the box(es) if supplies need to be refrigerated. Package(s) should be labeled as shown below.

                 Your Name____________, Guest
                 Gideon Putnam Hotel
                 24 Gideon Putnam Road
                 Saratoga Springs, NY 12866
                 Hold for 6/___/09  Arrival
                 Oley Conference Attendee 

Getting to the Hotel

Albany International Airport (ALB) is 35 minutes from the hotel. Driving directions and map are posted on www.gideonputnam.com. Parking is free. There is also Amtrak service to the Saratoga Springs station (10 min. cab ride from the hotel). Transportation options from the airport include:

  • Trailways Bus, (800) 776-7548, www.trailwaysny.com. $5.75 one-way ticket (purchase in baggage claim area). Five shuttles run from the airport to the Saratoga Amtrak station, 7 days a week. Schedule available by calling.

  • Taxi from airport, about $65 for one person one way, extra passengers cost $1 per person, limit 4 people per cab. Pick up outside terminal or call Capitaland Taxi at (518) 496-9113.

  • Rental car. At airport: Avis, Budget, Enterprise, Hertz, National/Alamo. Nearby: Thrifty.

Travel Grants for Conference Goers!

Thanks to generous donors who believe the conference is extremely beneficial, there are several $500 travel scholarships available this year to homePEN consumers who will be attending the Oley annual conference for the first time. There is also a limited number of corporate-sponsored travel grants for Regional Coordinators. Applicants should not be receiving any other financial assistance from homecare companies, etc. for travel and/or lodging expenses related to attending the conference.

First-time conference attendees should write two paragraphs describing how they believe attending the conference will affect their life and submit them to us by May 15 (address below). The ideal candidate will also describe their plans to share information learned at the conference with consumers and/or clinicians back home. Travel must be completed and receipts received by Oley before reimbursement can be made.

Compassionate Flights

Angel Flight NE and other organizations may provide free air transportation to patients whose financial resources would not otherwise enable them to travel for medical reasons. Click here for a list of these organizations or call (800) 776-OLEY.

Other Ideas to Cover Travel Costs

  • Request a travel scholarship from a church or synagogue; your local United Way; a local Kiwanis, Rotary or Lions club;  a disease-specific organization like the March of Dimes, Easter Seals or Muscular Dystrophy Association; or a wish-granting organization (see list posted at www.oley.org/Wish_Granting.html).

  • Get a break on your taxes! Because the conference is educational, some conference-related expenses may be tax deductible. Talk to your tax consultant or visit www.schwablearning.org.

Tips for Travel

Visit www.oley.org or call (800) 776-OLEY for tips on traveling with homePEN, including sample letters and medical forms to smooth your passage through airports, and a list of experienced consumers to answer your questions.

Register Today!

Register for the conference online or download and complete the form. Registration is FREE for patients, caregivers, and family members.