Join Oley in Sunny Florida        (Print Conference Registration Packet)

                                                                       

Book Your Room Now

Join us at the Trade Winds Island Resort in St. Petersburg, Florida, for Oley’s Annual Consumer/Clinician Conference, June 29–July 2. You’ll gather a wealth of information—from faculty, exhibitors, and other homePEN consumers—and you’ll love the relaxed atmosphere of this Gulf Coast resort. You’ll have a chance to enjoy the white sandy beach, curl up in a cabana to “wind down,” and/or enjoy the many restaurants, swimming pools, walking paths and activities that the resort alone offers.
The program and activities we have planned are geared to help you explore ways to keep complications at bay and to make the best of your life dependent upon tube feedings or infused nutrition. (See the preliminary schedule below.)

Personal Experience

One mom who attended the Oley Annual Conference in 2008 said, “It changed our life, our outlook, and our marriage. The information that we received during the seminars was amazingly helpful, the friends we made will be life long, the memories will never die. The connections we made with medical professionals and speakers there gave us confidence and hope. The research, tips and different approaches and protocols we learned about were exciting and inspiring. It was undoubtedly the best week my husband, son and I had in two years.”

Why Should I Attend?

The Oley Foundation conference focuses on the medical and emotional challenges of patients on home intravenous nutrition and tube feedings. Information is shared in large and small groups led by well-known clinicians from across the country and attended by people who depend on tube or IV feeding.

Come to the conference to:

  • Understand more about the therapy that sustains you or your family member.

  • Learn how to better deal with day-to-day life.

  • Communicate your health care and emotional needs with more self-assurance.

  • See what the future may bring for those on long-term HPEN.

  • Meet others living at home with tube and/or IV feeding.

As one attendee put it, “Whether it was ways to reduce line infections or learning about portable feeding pumps to improve our quality of life, Oley provided us hope.”

 Plus!

Many of the obstacles that might stand in the way of traveling have been removed: 

  • Local emergency room information will be identified.

  • Nursing/pharmacy backup support has been arranged. 

  • Hotel staff has been briefed about your supplies and shipping needs.

  • Refrigerators are in all guest rooms. 

  • The room rate we’ve negotiated is a steal for a resort like this.

  • The sun will shine and you will be warm!

 

General Information

Registration — Free for Consumers/Families

Register online or call (800) 776-OLEY for a form. All registrants are responsible for their own hotel and transportation arrangements. If you wish to confirm your registration, please allow 7 business days before calling.

Conference Headquarters & Housing

Trade Winds Island Resorts
5500 Gulf Blvd.,
St. Petersburg, FL 33706
www.justletgo.com  •  (800) 345-6461

Rate:  • $139 Single/Double
          • Effective from June 26 through July 2
          • Includes resort fee! ($25 additional per/night savings)
          • Mention “Oley Conference” to access room block
          • Reserve by 5/26/09 to secure rate!

 Child Care/ Youth Activities/Jammin' Jammies

Complimentary child care will be available at the hotel, Tuesday and Wednesday during the educational sessions. We also offer chaperoned activities for children ages 7+ in the afternoon and a pajama party for kids on Wednesday night.

 Medical Support—Keeping You Safe!

All Children’s Hospital and Bayfront Medical Center will be alerted and prepared to receive any medical emergencies that arise. The Tampa  branch of Apria Healthcare / Coram Inc., Specialty Infusion Services  will provide emergency infusion support (should you forget something, have a bag break, etc.) along with telephonic nursing/pharmacy support during the conference.

Shipping HomePEN Supplies

When shipping your supplies, separate items that need refrigeration from those that do not. Clearly indicate if supplies need to be kept cool on the outside of the box(es). Package(s) should be labeled as shown below.

                 Your Name____________, Guest
                  Trade Winds Island Resorts
                 5500 Gulf Blvd.
                 St. Pete Beach, FL 33706

                 Hold for 6/ /09  Arrival
                 Oley Conference Attendee

Where to Get More Information

To learn more about the conference, call the Oley Foundation (518) 262-5079 or (800) 776-OLEY; or email bishopj@mail.amc.edu.

 Program At-A-Glance

Note: The arrival and departure days have shifted from our typical pattern, as has the scheduling for a few of the activities.

Monday, June 29

2:00 pm – 5:00 pm   Regional Coordinator Workshop
6:00 pm – 7:00 pm   Early Registration
7:00 pm – 9:00 pm   Welcome Reception

Tuesday, June 30

8:00 am -– 4:30 pm  Registration/Information
8:30 am -– 9:00 am  First-Time Attendee Orientation
9:00 am – 9:45 am   Welcome/Awards Ceremony
9:45 am – 12:00 pm Main Session I:    Finding the Best Balance
12:00 pm – 2:00 pm Grand Opening of the Exhibit Hall
12:00 pm – 4:30 pm Transition to Independence
2:00 pm – 4:30 pm   Youth Activity
2:15 pm – 4:30 pm   Tube Feeding Workshop

2:15 pm – 4:30 pm   Breakout Sessions I & II  (choose 2)

            T-1. Input and Output
            T-2. Intestinal Transplantation
            T-3. Catheter Care/Preventing Sepsis
            T-4. If, When and How to Transition from HPN to HEN
            T-5. Lock and Load: Antibiotic Therapy Controversial?
            T-6. Avoiding HPN-Associated Complications:    Liver, Renal, Bone
            T-7. Managing Gut Pain Effectively

7:30 pm – 9:00 pm   Oley Silent Auction

 Wednesday, July 1

9:15 am – 4:30 pm   Registration/Information
9:30 am – 9:45 am   In Loving Memory
9:45 am – 12:00 pm Main Session II:    Riding the Waves
12:00 pm – 2:00 pm  Raffle Day in the Exhibit Hall
2:00 pm – 4:30 pm   Youth Activity
2:15 pm – 4:30 pm   Pediatric Workshop

2:15 pm – 4:30 pm   Breakout Sessions III & IV (choose 2)

W-1. Trace Elements:  What Are We Learning
W-2. Emerging Therapies for Intestinal Failure
W-3. Dating Issues
W-4. Exploring Complementary Medicine
W-5. Food for Thought and Intestinal Failure
W-6. Gastroparesis / Dysmotility
W-7. Understanding Your Lab Values
W-8. Accessing Medicare, SSI, FMLA and Other Benefits

6:00 pm – 10:00 pm Beach Party Picnic
8:00 pm – 10:00 pm Jammin’ Jammies

 Thursday, July 2

9:00 am – 10:00 am Oley Walk-A-Thon
10:00 am – 12:00 pm     Town Hall Meeting/Breakfast

 Program Highlights

Main Sessions

Finding the Best Balance

Enjoy enlightening presentations coordinated to enhance your:

  • Understanding of how others reach their goals

  • Insight regarding intestinal rehabilitation 

  • Knowledge of bacterial overgrowth

  • Awareness of the importance of food in your life

Riding the Waves

In the sea of challenges this series of presentations is coordinated to assist you in developing a “life preserver.” Join us to:

  • Explore and “surf” through the GI tract and absorption

  • “Hang ten” with safe practices for sustaining yourself on HPN

  • Learn about staying afloat with oral rehydration formulas

  • Catch the latest wave of information about Omegaven

 Tube Feeding Workshop

A must-attend for tube-feeders. Come Tuesday afternoon to learn more about navigating the complications of tube feeding, options for choosing tubes and/or for changing formulas, and troubleshooting skin/wound care options. Plus, you’ll enjoy the invaluable opportunity to brainstorm with peers.

 Pediatric Workshop

Scheduled for Wednesday afternoon, this interactive session provides an opportunity for parents to come together to learn more about issues specific to their homePEN children.  Formal presentations, plenty of time for questions and a series of more intimate roundtable discussion set the stage for an enlightening afternoon.    

 Transition to Independence

Join the young adult group (ages 15+) to learn what you need to put in place if you are to succeed in assuming responsibility for your medical care, heading off to college, living independently, etc.  After a brief presentation related to the seriousness of taking responsibility, the group will enjoy an afternoon of networking with your peers.

 Walk-A-Thon Raises Funds, Awareness

This year’s route is a short walk down the beach (less than an hour). Use the form to gather sponsors for this event and help raise awareness. Download forms here  or call (800) 776-6539 for a paper copy.

 
Travel Information

Getting to the Hotel

Tampa International Airport (TPA) and St. Petersburg/Clearwater Airport (PIE) are 30 minutes from the hotel. Driving directions and map are posted on www.justletgo.com. Parking is included in the resort fee for hotel guests and $15/day for all others. Transportation options include:

  • Taxi, $22 one way

  • Super Shuttle, $25 per person one way. Reservations not required from airport (www.supershuttle.com, 800-258-3826)

  • Studio Sedan Service. Reservations required (www.sedan2airport.com, 866-403-3303)

 Travel Grants for Conference Goers!

Thanks to generous donors who believe the conference is extremely beneficial, there are several $500 travel scholarships available this year to homePEN consumers who will be attending the Oley annual conference for the first time. There is also a limited number of corporate-sponsored travel grants for Regional Coordinators. Applicants should not be receiving any other financial assistance from homecare companies, etc. for travel and/or lodging expenses related to attending the conference.

 First-time conference attendees should write two paragraphs describing how they believe attending the conference will affect their life and submit them to us by May 15 (address below). The ideal candidate will also describe their plans to share information learned at the conference with consumers and/or clinicians back home. Travel must be completed and receipts received by Oley before reimbursement can be made.

 Angel Flight NE Compassion Flights

Angel Flight NE provides free air transportation to patients whose financial resources would not otherwise enable them to travel for medical reasons. Flights are generally limited to a 300-mile range. For more information visit www.angelflightNE.org or call (800) 549-9980.

 Other Ideas to Cover Travel Costs

  • Nominate yourself or your loved one for an Oley award (see details at www.oley.org). Most awards come with a partial travel scholarship.

  • Request a travel scholarship from a church or synagogue; your local United Way; a local Kiwanis, Rotary or Lions club; or a disease-specific organization like the March of Dimes, Easter Seals or Muscular Dystrophy Association.

  • Get a break on your taxes! Because the conference is educational, some conference-related expenses may be tax deductible. Talk to your tax consultant or visit www.schwablearning.org.

 Tips for Travel

Try the Travel Tips page  or call (800) 776-OLEY for tips on traveling with homePEN, including sample letters and medical forms to smooth your passage through airports, and a list of experienced consumers to answer your questions.